Things are going alone pretty good I suppose. One night Bruce couldn't eat dinner and got so tired he felt like he could fall over and nothing helped- not even the beloved Dunkin Donuts Coffee. So nurse said it was probably a drop in potassium and to drink some OJ. Next day he was fine, and hasn't really happened again. Other problem is constipation so they gave him some Rx laxative powder to mix and drink 2 x a day. If he doesn't do it then he is in bad shape.
He is looking forward to getting switched to the nighttime dialysis because now it's tricky to always plan the exchanges at the right times and it ends up making him not feel as good and not as much comes out because his body starts to absorb it if it's in there too long. He is basically caring around 1 liter of sugar water in his peritoneal cavity all day long. The exchange is just replacing the old with the new. So the nighttime machine will do all the exchanges at night while he sleeps so he should be more comfortable during day and feel better.
The medical tape from Baxter on the catheter is brutal to his skin, he keeps ripping his skin and bleeding on the sheets, his clothes, etc. Don't know if there is a solution for this.
We had dilemma with Social Security office over the medicare application...more on that later.
1 year ago