Bruce has been going back and forth between living at his parents house for a few days then back home for a few days. This week he saw the Dr. at Lifelink in Tampa on Tuesday and they told him he didn't need to return until March 2. (2 weeks) So he got to officially move his things home. He can return to work in about 2 weeks also. He is not 100% of course but he gets better slowly everyday. Most of his issues now have to do with drug side effects. He will get to see both boys play every baseball game now which is something he was very worried about.
He will go see the Neurologist here next wed. to talk about the driving issue. He was supposed to not drive for 6 months from the seizure which will be March 15. But he knows he is not at risk for seizure so there is no reason for him not to drive.
Sometime soon he needs to go back to Tampa General and have a minor surgery to have the stint removed that was placed during the transplant. We have to wait to get a call from the hospital to know when. Maybe by April he will get to start seeing Dr. Russo here and not have to travel back to Tampa but we are grateful that he has progressed this fast in recovery. I never imagined he would only be seeing Lifelink every 2 weeks this quickly after such a rough start. He is very anxious to start work and living normal life again.
Since being discharged they have only cut down his Prograf once, but the steroids have been cut in half 2 times. A few other drugs have been dc'd. We hope he gets off the steroids completely. Otherwise I might have to get another job to afford the food he is eating. I am living at the grocery store trying to keep up because I am not used to it. He is always hungry. He has lost so much weight but now I can see the puffy steroid-look getting to his face and neck. He still weighs the same but I don't see how with how much food he is taking in.
Bruce's brother Sean is pretty much back to routine -working and feeling good except for headaches which are side effect of the Prograf. Both donors seem to be back to normal life also. We are all very lucky.
I opened "the bill" from Tampa General today. I told Bruce to guess at the total- he guessed $300,000 - it was $379,000. Thank you health insurance and medicare! Considering all that was done it's not such a huge amount. The kicker is the pharmacy portion- $73,000 for medicine. As much as the transplant itself. I don't mind big bucks going to the surgeons, doctors, and nurses, but that much to drug companies really disgusts me.
1 year ago