Mrs. Claus came over and helped Bruce set up the nighttime machine. It is about the size of a large copier but it fits on his nightstand. There is another TV tray stand next to it to hold a bag of fluid. There are about 10 tubes coming out of it and going in all kinds of directions. One of them runs to the bathroom shower. It is all digital and if something goes wrong in middle of night it sounds an alarm.....can't wait for that to happen*!
Mrs. Claus said once again that this will make such a big difference but I am not getting my hopes up. The machine itself costs about $18,000.00 and there are more supplies that go with it than manual dialysis. He throws away so many tubes each time he uses it. I don't even want to know what it all costs. Our maximum out of pocket per person is supposed to be $5000 per year but it seems they always find a way to make it more. Our insurance went up again this month also.
Bruce's mom is looking into fundraising options and has found a place that organizes all of it and puts it into an account to pay medical bills which also makes it tax deductible. There is a lot of paperwork that Bruce has to fill out. I will update on that once I have the time to figure it all out.
1 year ago