This week has been a killer. I am being run to death and pulled in every direction. Bruce not being able to drive and needing to go to Dr. appointments, dialysis for 4.5 hours, picking up things from work on top of taking kids to schools and picking them up at different times, baseball practice, etc. etc. etc. is too much for me to do and try to work also. It's been a scheduling nightmare. Whatever it takes, I will not leave the doctor appointment on Monday unless he gives him permission to drive to work!
Bruce seems to be stronger and have a little more energy today so I hope that can last over the weekend. Yesterday he got a pain in his back - flank pain like where a kidney would be but since he has none, I thought it could be something to do with the nephrectomy surgery. Tonight the dialysis nurse said she thought it was scar tissue healing. He had to take pain medicine yesterday which he hasn't needed in a long time so I knew it was bad. Still hurts today but not as bad. He still has the all over aches that he has had since he got home from hospital. Dr. Russo mentioned that it could be because of the uremia. It seems that he is just not getting enough dialysis but I am wondering if this was happening before the seizure or is this just a set back from the seizure and hospital stay. The definition of uremic poisoning (link above) is exactly how he has been acting. I hope since today was an improvement that means the dialysis is doing a better job. They have started giving him some nutritional shakes this week also. The blood pressure is staying good and he is sleeping much better than before seizure. ~knock on wood~
We got the latest hospital bill. I don't want to dwell on the financial aspect of all of this or I will get crazy, but I found it very interesting to compare each of his hospital stays and their costs. This "seizure incident" was double the cost of the Nephrectomy surgery. One main reason was the amount of drugs given this time $34,812.00! When he had surgery it was $6878.00 including anesthesia. I thought the respiratory part would be high, but it wasn't at all. So there's something to think about in the big picture of what health care costs. The drugs costs more than the room charges or anything else.
1 year ago