tag:blogger.com,1999:blog-3362900833258747841.post7843112390097770072..comments2023-10-21T07:43:43.675-04:00Comments on pkd sucks: Amy's Taxi Service Must EndHoefling-amyhttp://www.blogger.com/profile/07714395631873752566noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-3362900833258747841.post-91527483479620317552009-10-05T21:22:21.674-04:002009-10-05T21:22:21.674-04:00The irony of the drug costs is that we use many of...The irony of the drug costs is that we use many of the same drugs (propofol, fentanyl, morphine, hydromorphone, diazepam, midazolam, cefazolin, ampicillin, lidocaine, bupivicaine; any of these sound familiar?)--AND we don't get volume discounts like hospitals do--and you would be horrified at how cheap most of them are, like in many cases under $10 per 10 or 20 mL bottle). I hope health care Edenhttp://www.edensroom.comnoreply@blogger.comtag:blogger.com,1999:blog-3362900833258747841.post-21778523153728336152009-10-05T19:58:59.824-04:002009-10-05T19:58:59.824-04:00Could you ask one of your next door neighbors to c...Could you ask one of your next door neighbors to come over when you go to pick Bruce up at 9:30? The kids would probably be in bed & the nighbor would just have to sit & watch TV & wait for you to run & get him.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3362900833258747841.post-666493125810370662009-10-05T19:52:23.854-04:002009-10-05T19:52:23.854-04:00Perhaps Bruce could ask thr nurses at the dialysis...Perhaps Bruce could ask thr nurses at the dialysis center if anyone of them live near your area. If so, maybe they would be willing to drop him off on their way home. Or, maybe another patient who is on the same schedule could drop him off. Just a thought!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3362900833258747841.post-22069723014181938462009-10-05T19:19:13.876-04:002009-10-05T19:19:13.876-04:00Amy, how late is Bruce's evening dialysis appt...Amy, how late is Bruce's evening dialysis appt? How far is it from home? Is it every night or just two nights or is it three times a week? Try getting the schedule out to some service organizations or even your church men's group. Does Beck live too close to school to qualify for riding the bus?? With the possibility of a transplant looking better, maybe the worse case scenario to get Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3362900833258747841.post-16067278297086513682009-10-05T00:08:14.080-04:002009-10-05T00:08:14.080-04:00We will see what tomorrow brings. I am hopeful it ...We will see what tomorrow brings. I am hopeful it will work out. The social worker said there is no service to drive him that late at night and we can't get his time switched now. <br /><br />I don't know anyone to pick up Beck because all of his friends ride buses or bikes home. And I need him to come home and get homework done instead of going to play somewhere because he has baseball Hoefling-amyhttps://www.blogger.com/profile/07714395631873752566noreply@blogger.comtag:blogger.com,1999:blog-3362900833258747841.post-73793370334223500462009-10-03T22:43:37.358-04:002009-10-03T22:43:37.358-04:00Doesn't Bruce have co-workers who would be wil...Doesn't Bruce have co-workers who would be willing to give him rides to & from work? They could take turns & divide the days among themselves. Do they know he needs this help? They would probably be more than willing to help out. Also, could you ask one of the parents of a classmate in your boys' classes to help with rides home? It wouldn't have to be everyday, but from Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3362900833258747841.post-39732140877428516532009-10-03T10:26:37.420-04:002009-10-03T10:26:37.420-04:00The service the above post alludes to is the one I...The service the above post alludes to is the one I mentioned previously that many counties provide for the handicapped. They come right to your door. Much of this kind of stuff should have been addressed by whomever the hospital designates to do what is called "discharge planning" before a pt goes home. Do you not have a social worker who assists you with these and other issues?? <br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3362900833258747841.post-78173286748961779882009-10-03T08:01:55.516-04:002009-10-03T08:01:55.516-04:00Amy, I don't know if it's an option for yo...Amy, I don't know if it's an option for you, but when I had my second nephrectomy and to get to and from dialysis and was unable to walk long distances, I qualified for handicapped service from the local transit authority. They would pick me up and take me to and from the center. A number of other patients used the service as well. The social worker at the dialysis center facilitated the Davidhttps://www.blogger.com/profile/05425896520724063588noreply@blogger.com