Today was the best day so far. Blood pressure remained too high, but by evening I believe they finally got it under control. He made it all day on liquid diet without getting sick. He is starving but they won't give him anything solid until tomorrow.
He is mentally not quite with it yet. Had I not seen this before when he had his surgery I would be very worried that something was wrong, but last time it took at least a week for the drugs to be all out of his system. He can remember such details about things but then totally blank out on something that happened earlier in the day. He has seen the same Nephrologist everyday since he got there and I don't expect him to remember last week but he has had no drugs at all since friday night and he can't remember seeing this doctor yesterday or today. They had long conversations together both days too. He also says things that make absolutely no sense. I know it just takes him longer to get to normal because of the lack of kidneys and I know he's had every brain test in existence. It's just not great knowing that I have to work next week and can't be there to speak to the doctors when they visit because there is no telling what he will say or remember.
I'm very curious to see if they end up discharging him without addressing what made him have the seizure. They ruled out everything but no one has even entertained the idea that it was lack of sleep (maybe combined with the Ambien). This was complete sleep deprivation not just some trouble sleeping. I made a post last weekend about how I had never seen anything like it. I knew the moment I got the phone call that he was in ER with seizure that was the reason and I said so as soon as I got there. The most response I have gotten is that it "could be a contributing factor". This has to be taken care of or he will go home and the same thing will happen. I know we can meet with Dr. Russo and discuss this but I will be amazed if they let him leave hospital without even trying to do something about it. I have numerous links bookmarked about hemodialysis patients and insomnia, restless leg syndrome and links that sleep deprivation alone can cause a seizure in someone who has never had one. I am ready!!!
1 year ago