Bruce went to this today. An RN from LifeLink was there to explain transplant process and answer questions. Most of it Bruce already knew from the hours we spent at Lifelink last year. The only thing that was a concern is the RN said that they have "never" taken out the polycystic kidneys at the same time as the transplant. So Bruce is going to have to try to push harder for more info. This has been an ongoing conversation between him and his nephrologist, Dr. Russo. He said that they tell you they won't do it or don't want to do it, but that they do actually do it. It is up to the surgeon at the time. We asked if we should be visiting the LifeLink surgeon again to discuss but Bruce's RN at LifeLink said we didn't have to. It's very frustrating to not have an answer. If a kidney became available and they wouldn't take the old ones out, it would be TERRIBLE. So we need to do something.
Bruce has appt. this Friday with surgeon in Fort Myers who did his catheter to see if he needs the surgery to fix the hernia. We can ask his opinion, but he is not the surgeon who will be doing the transplant because Bruce is having it done in Tampa at LifeLink. He told us when he put the catheter in that Bruce's kidneys needed to come out because there is no room.
I will post update after the visit on Friday. I really hope he doesn't have to go through another surgery for the hernia. We wanted to try to get out of the house and go to Disney this month but don't think that will happen if he needs surgery.
1 year ago