Bruce went to work this week. He still has very very little energy and still getting sick once a day. He has improved from last week though. Dialysis is going good- all at night again and he goes tomorrow to get blood checked and get another shot.
We are not allowed to know if anyone has called to be a donor or is getting tested. LifeLink will not tell us anything.
Bruce has appt on June 26, next friday, with Dr. Burtch the surgeon. He is the one who did the catheter surgery in December and the one that his Nephrologist Dr. Russo strongly recommends. He has said before that IF Bruce has a live donor, he would do the surgery all at one time (take out kidneys, put new one in) But United Health Care has sent Bruce to LifeLink in Tampa not here in Fort Myers. If there was a live donor, we would have to at least try with insurance to find a way to do this all at once.
At this point, he has no live donor, so we will meet with Burtch and get into the details of the Nephrectomy. I know that Bruce, Russo, and Burtch all agree both kidneys should go. I just want to make sure that is best option. Also, the incision is going to be large one down the center, and I want to make sure there is no other way. Laproscopic removal is a possibility but his may just be too large. Then we need to talk to Russo about living with no kidneys and going on hemodialysis through a port until he heals and can get another catheter surgery to go back on Peritoneal Dialysis. It is coming down to the wire, he really has to get the kidneys out. And he worries about it non-stop.
11 months ago