Not much has changed this week at home. He is nauseous and usually throws up in morning. He is barely eating. Nurse told him to eat anything he feels like eating to get some nutrients. He is doing more dialysis at night but not during the day because he couldn't handle it. He has almost no energy. His hemoglobin is at 8.1 from Monday's blood work so that explains the energy level. They gave him shot today to boost the hemoglobin (I think they use Procrit) and he will get more shots next week and check blood again.
His hernia got worse in hospital, so he has to be super careful because it could become a surgery emergency which means they would take kidneys out at same time. Maybe someone will donate kidney and be a match before he ends up in emergency surgery getting the kidneys out. If one of them bleeds again, then I'm sure they will do the surgery immediately. If he gets no news on a donor then we hope he can make it until August to do the surgery. Then just pray he comes through it well and can function on more dialysis without any kidneys while he waits on a kidney from Lifelink which could be another year.
He is working at home in between napping. He doesn't have energy to do anything else. I don't even know if he should have driven himself to Naples for nurse visit today but I had a conference call and a video shoot. I know he couldn't climb stairs or anything like that without feeling like passing out. He started taking his phosphorus binders again today so that his phosphorus levels don't get out of control. He should probably go back to taking potassium tomorrow because the dr. said if he wasn't eating to take them. It's hard to remember all of these things. Especially when he's got 20 medicine bottles and it switches almost daily what he's taking.
1 year ago