Bruce had appointment on Sunday at hospital that went well, then another one at Lifelink on Monday. Him and his dad waited forever. They was there before they opened (7:30) and didn't finish until 11:30. This was apparently because it was a lab, nurse, then Doctor visit. Not all of them are Doctor visits so they should not be as long. His creatin was down to 4.6 on monday - woo hoo! His next appt. is Thursday so at this rate he should be below 2 by then. He has another appointment next Monday, and then there will be other visits where they take out his stitches, dialysis port, and the stint that is still inside him from surgery. They will not allow him to come home and do his visits with his Nephrologist here and they still keep saying it will be 3 months of visits there at Lifelink. That is the worst scenario we hope.
I drove up with my parents and the kids to see him on Sunday, but it was too much to do in one day. The kids were exhausted and really didn't get much time with him. Bruce's blood pressure is dropping too low and causing him to be very light headed and weak. He was pale, freezing cold, and looked worse than when I left him in the hospital. As the kidney works more, the BP gets better which makes the medicines drop the BP too much. On Monday they took off one BP medicine, the patch that he was wearing, and that helped for one day but it is still happening. He had low BPs again today, so they will probably reduce them more on Thursday. This is not great for him at the moment but good news overall that the kidney is making him healthier everyday.
He is getting well-taken care of by his mom and dad and if he was here everyday, I couldn't possibly be around enough to do what he needs right now. His mom has helped him try to learn all the medicines and dosages. Lifelink gave him a huge pill box to organize them since he takes 20 some pills at one time it can be overwhelming. Bruce learned that not taking his Prograf (anti-rejection med) EXACTLY on time makes him start to get very shaky and irritable. That was one other noticeable thing on Sunday- his hands are shaking. He was told that is supposed to slowly go away.
We are planning on getting Bruce home for the weekend so he can see kids more and be home for a little break. :)
11 months ago